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Discussion / Re: Not coping and needing some one to talk to
« Last post by colinstares on March 22, 2011, 10:40:31 PM »Hi tweetipie, Ihave just registered with this site, my name is colin, me and my brother,mother and grand dad all suffer with this hht and nose bleeds.We also live in wiltshire(swindon).
My brother had a very bad problem with nose bleeds and was refered by his gp to see Prof valerie lund at the Royal national nose,ear and throat hospital, she performed a rhinoplasty closure of both nostrils and this has changed his life altogether and he now leads an almost natural lifestyle.
My mother and I have also had this operation and believe me it has made a wonderous change to our lives, yes you have to get used to not smelling things through your nose but i soon got used to my tasting smells instead if that makes sense, but this is a small price to pay for not having to suffer from dibilitating nose bleeds and time off from work, I can now do most things and don't have to worry about carrying yards of tissues to bung up my nose when it bleeds. I had before this operation had my nose filled with liquid silicon to make plugs for my nose by my local hospital, but these irritated it so much that it was impossible to kep them in. I then took my brothers advice and got my gp to refer me to Prof lund in london(your local practice has to fund this i think, i might be wrong about this but your gp does have to make the referal, so keep on at them!!) Her email address is V.LUND@UCL.AL.UK drop her a line for information. if you or yor mum needs to talk, drop me an email at colin.stares@btinternet.com.
Good luck
Kind regards
Colin
My brother had a very bad problem with nose bleeds and was refered by his gp to see Prof valerie lund at the Royal national nose,ear and throat hospital, she performed a rhinoplasty closure of both nostrils and this has changed his life altogether and he now leads an almost natural lifestyle.
My mother and I have also had this operation and believe me it has made a wonderous change to our lives, yes you have to get used to not smelling things through your nose but i soon got used to my tasting smells instead if that makes sense, but this is a small price to pay for not having to suffer from dibilitating nose bleeds and time off from work, I can now do most things and don't have to worry about carrying yards of tissues to bung up my nose when it bleeds. I had before this operation had my nose filled with liquid silicon to make plugs for my nose by my local hospital, but these irritated it so much that it was impossible to kep them in. I then took my brothers advice and got my gp to refer me to Prof lund in london(your local practice has to fund this i think, i might be wrong about this but your gp does have to make the referal, so keep on at them!!) Her email address is V.LUND@UCL.AL.UK drop her a line for information. if you or yor mum needs to talk, drop me an email at colin.stares@btinternet.com.
Good luck
Kind regards
Colin

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