Author Topic: Just Introducing Myself!  (Read 3919 times)

Offline terry

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Re: Just Introducing Myself!
« Reply #15 on: April 20, 2007, 06:16:53 PM »
Hi Everybody,

My name's Terry & this is my second attempt at writing something -I don't know what happened to my first message, but it disappeared into cyberspace!!

I have HHT, as do my three children, but didn't know much about it until I looked on the BBC website (to read about nosebleeds) over four years ago, & was directed to the UK hht site.  I printed all that off, took it to my GP, & asked him to refer me to the Hammersmith Hospital, to which he readily agreed.

My chief problem is nosebleeds; I had embolization of arteries leading to my nose at the Hammersmith - that stopped the bleeding....but....only for 11 days! (Then it was back to normal!)

My next plan is laser treatment with Prof Valerie Lund at the Royal National Throat Nose & Ear Hospital, but I'm not too hopeful!!

Anybody else had these procedures & found them useful? (or not?)

Best regards,
Terry.

Offline philbarto

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Re: Just Introducing Myself!
« Reply #16 on: April 20, 2007, 06:27:23 PM »
Hi Brenda here are a couple of web sites to visit if you have not already done so they me be of help
Telangiectasia Self Help Group
Hydrogen Breath Test | University of Michigan Health System
regards    Phil