Hi lenny here once more, seeing my Ent specalist tommorow, not sure if any thing will be done. Having regular iron infusions once again and blood transfusions, every three to six months, Do not seem to be getting the really big nose bleeds at the moment but a lot of little ones, but as you probably all know when you get one or two big ones,you seem to get more. Intested in the other posta about transamic acid and also the different creams ect put up the nose the only cream Iv ever been offers ,when I tried to apply it started my nose bleeding once again, defeating the object.By the way a lady who lives a couple of streets away from me has HHT. She met my sister in a hospital waiting room and got talking to each other.Also saw one other sufferer on a ward,when I was having a transfusion.Will update you on what happens tommorow if any thing does that is.Lenny.
