Hi again Scorpio,
Seems like we have all been away for a bit

Thank you for your reply.
I hope you are both doing well, it is a life changing experience.
I believe it is a rare complication of HHT. Out of 35 of us in my family with HHT, I am fortunately the only one. And I believe that it is also rare to have a 100% of the family with it (albeit with varying degrees).
And yes I am happy. I know what matters to me in life now and am not distracted by the unimportant. I have discovered my true freinds and relationships. I am limited to what I can do but I still have my life and for that I will be forever thankful to everyone who treated (and still treats) me, my brother and mother and my fiance.
Hugs for you and your mum. Hope you bothe stay well. tc
kind regards
April