Hi,
Thanks Matt for this post but I felt I have to raise my concern here. I realise that you are posting us on behalf of Marlene. So this reply is also to Marlene by proxy.
I trust that you forwarded this post to be helpful

We are after all here to help one another and that we are trying to find answers that no-one can seem to give us at the moment. So it is always going to be tempting to try things that we would otherwise be cautious about.
There may well be a good , safe, effective treatment out there for us but how can we be sure? Health and life is far from a gambling issue and any damage can be irreversible. I would suggest that any treatments be discussed with your doctor before you even attempt them. How can you be sure of no side effects ?
Another point to consider is that many people will exploit incurable conditions.
I really do wish you all the best Marlene. Good luck and stay well xx