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Author Topic: How did you find us?  (Read 6022 times)

Offline Matt

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How did you find us?
« on: June 16, 2008, 11:50:28 PM »
Just curious as to how everyone discovered/discovers this site - was it from a simple Google search, or was it a recommendation by a friend, or even a link from another site?

Please feel free to tell me (as it will show me whether I may need to look into promote the site more somehow, or whether it's easy enough to find as it is).

Also, feel free to reply to this topic no matter how old it may be when you come to it - this topic is meant to stay here for as long as possible to ensure exposure :)

Thanks.
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Offline Moley

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Re: How did you find us?
« Reply #1 on: June 25, 2008, 12:30:41 PM »
Hi, I stumbled across you purely by chance, which then prompted me to actually get something done, having known I've had this condition for the last 25 years.
I'm booked in to see the HHT team on July 1st in Hull, after waiting since October 2007 for a referral. Moley  ;D
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Offline suzan lancs

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Re: How did you find us?
« Reply #2 on: February 12, 2009, 12:52:23 PM »
total fluke, was looking for informatoin on hht conference in Feb, saw the name David Matzdorf, thought real person, logged on and my word real people!!!!!!!!!!!
      Cried so hard my nose bled <as per any rise in blood pressure> But real people,  people like me!!!!
     Thank you
                      Suzan
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Offline Matt

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Re: How did you find us?
« Reply #3 on: February 12, 2009, 01:40:49 PM »
Welcome to the site  ;D
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Offline Raymond

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Re: How did you find us?
« Reply #4 on: February 19, 2009, 11:11:40 AM »
I found your site by using google - I was trying to get some information on HHT - a particular question I had & the search picked up a discussion thread.

It was 100% spot on...
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Offline Matt

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Re: How did you find us?
« Reply #5 on: February 19, 2009, 08:09:56 PM »
Good to know - welcome to the site  ;D
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Offline Luke

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Re: How did you find us?
« Reply #6 on: April 15, 2009, 10:26:26 AM »
Hi

My name is Luke and I am 15 years old.  Yesterday my Mum and I got the results from genitics testing and I also have HHT.

My Mum (Tracey) is already a member of this site and has set up my profile too so that I can commuicate with others that also have HHT.

Luke
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Offline Matt

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Re: How did you find us?
« Reply #7 on: April 16, 2009, 07:31:33 AM »
As I mentioned in your other topic, welcome to the site, I hope your time here is helpful to you :)
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Offline jan55

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Re: How did you find us?
« Reply #8 on: November 02, 2009, 09:57:26 AM »
I have tried to access this site before and not been allowed by the protection on my computer to get this far.
I found you looking for information on the condition, Hht.
I am a sufferer I have had coil embolization of Lung AVM's, 5 yrs ago.
 
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Offline Matt

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Re: How did you find us?
« Reply #9 on: November 03, 2009, 10:25:42 AM »
Welcome to the site, though I'm not sure why any software would be blocking you from accessing here.
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Offline Erica

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Re: How did you find us?
« Reply #10 on: December 10, 2009, 10:23:55 PM »
Hi
I am new too. I found it easy to find but hard to work out how to use.
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Offline Matt

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Re: How did you find us?
« Reply #11 on: December 12, 2009, 09:06:39 AM »
Quote from: Erica on December 10, 2009, 10:23:55 PM
Hi
I am new too. I found it easy to find but hard to work out how to use.

Welcome  :)

Sorry to hear about your difficulty in using this forum, if you click on the 'Help' link (it's to the right of the 'Home' link above), the various instructions available should make it easier.
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Offline Erica

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Re: How did you find us?
« Reply #12 on: December 12, 2009, 09:50:37 PM »
Used the help feature but using a laptop and the whole screen was  not visable. I do not like laptops!!!!! Anyway, I used google searching "young's procedure" and this site was one of the firsts sites listed.
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