Author Topic: Recommended Links  (Read 3914 times)

Offline Matt

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Recommended Links
« on: May 19, 2007, 06:56:47 PM »
What is HHT?

HHT FAQ

Telangiectasia Self Help Group

HHT.org Forums

Have any other links you feel should be here? Feel free to suggest them.
« Last Edit: July 31, 2009, 08:16:59 AM by Matt »

Offline Raymond

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« Reply #1 on: February 19, 2009, 12:54:25 PM »
I've come across some other sites of interest.

The most obvious is http://www.hht.org

Also a dutch site with a graphic of the HHT type abnormality (normal -v- HHT) http://www.renduoslerweber.nl/content_uk/3.cfm. You can follow the links on this site to move around the dutch HHT site.

This link also has some good images of the condition - which is great if you are trying to see whether your "spots" are like those from hht sufferers http://www.renduoslerweber.nl/content_uk/6a.cfm

The Grace Nolan Foundation http://www.gracenolan.com/index.php?do=aboutus

HHT on HOUSE (Tv Program) http://www.housemd-guide.com/season3/316secret.php - i missed this episode! (Of all the episodes to miss...)

HHT Group on yahoo http://health.groups.yahoo.com/group/rediscoveringhopewithinhht/

There's probably a heap of other links - but I couldn't add them onto the main topic

... oh & my blog which goes through my ongoing journey with HHT.... http://raymondbrooks.blogspot.com/


« Last Edit: February 19, 2009, 12:58:00 PM by Raymond »