Recent Posts

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News and Updates / Tapatalk Plugin Installed - Now you can access using an iPhone, Android + more!
« Last post by Matt on June 26, 2010, 11:16:46 PM »
Tapatalk is a mobile forum app for iPhone / Android and soon to be on Blackberry and Nokia. Tapatalk supports all the usual forum functions plus full screen image viewing, image upload, caching (less reload), private messaging, all these features are accessible in just a few simple taps.

Tapatalk for iPhone:
Showing New and Unread Posts:



Full Thread Viewing and Pagination Support:


See Who's Online:


Reply to Post and Image Upload:


Some of the large forums activated Tapatalk support




Tapatalk for Android

Total Android Look and Feel


Same feature set as iPhone:


Quickly Reply to a conversation:


Latest and Unread Posts indicator and multi-tabs support:


Full screen image support - support landscape mode also



Check out http://www.tapatalk.com for more information!

Don't want to use Tapatalk, or your device isn't supported?
You can also access HHT / UK via the following:

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Discussion / Re: Amicar (aminocaproic acid)
« Last post by Matt on June 13, 2010, 10:55:30 PM »
Welcome to the site.
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Discussion / Amicar (aminocaproic acid)
« Last post by ingy on June 13, 2010, 03:48:18 PM »
I've been using Amicar, it stopped my nose bleeds from everyday to maybe once a week.  The time has been reduced to.  I used to have three to five hour, nose bleeds.  Now, only minutes.  There are several articles in The New England Journal of Medicines.  I'm 64, and have a huge family history of HHT. Lost several Uncle's and an Aunt, my Father and Grandfather.  The other medicine one may want to try is tomoxifen, which I understand will reduce the nose bleeds
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Discussion / Re: hello im new
« Last post by philbarto on June 12, 2010, 10:02:11 PM »
have you tried youngs procedure or full nasal closure i too had severe nose bleeds and had the procedure done 2 years ago not one nosebleed since
regards    phil
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Discussion / Re: hello im new
« Last post by Matt on June 05, 2010, 04:43:44 PM »
Sorry to hear about you undergoing such an experience, but welcome to the site.
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Discussion / Re: Blood loss
« Last post by aimee on June 02, 2010, 07:53:00 PM »
I've heard the following when trying to describe how severe a nosebleed is: 
When you get a nosebleed, do you need a kleenex (tissue), a towel, a cup, or a bucket? 
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Discussion / hello im new
« Last post by brett on June 01, 2010, 07:13:21 PM »
ive just found this site after getting home from a 3-day visit to hospital. im still in shock after losing consienceness in the street. passers by rang an ambo.when i came to i discovered that i had lost control of my bodily functions and was told that i had had a seizure the ambo gave me oxygen and observed my vitals before tranportation.whilst in hosp. i received 4 bags of blood and an iron infusion.i have been suffering nose bleeds for almost thirty years,and have had countless procedures to no avail. only have i found out that hht was my illness. i have just made an appointment to see a leading expert in hht treatment, this doctor specializes in lower skull surgery and has been utilized by brain surgeons to access the underside of the brain to remove tumors.for those who reside in australia he can be found at st vincents hosp. darlinghurst or the sydney ent . his name is dr richard harvey and can be contacted at his own website . my mother has now been properly diagnosed and my 16yr old son is suffering from nosebleeds. ps my hb was 65
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Discussion / Re: Blood loss
« Last post by Matt on May 16, 2010, 11:15:00 PM »
Good question, unfortunately I have no idea as I don't tend to count (but to my recollection it varies anyway). I do know that it's very rare for me to go without a nosebleed for a day though.
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Discussion / Blood loss
« Last post by davidm on May 15, 2010, 05:02:40 PM »
Hi everyone I have HHT and also have a lot of nosebleeds a day just recently they have quietened down a bit but the other day they came back with a vengeance and bled more than I can ever remember what I am interested in is the amount of blood that most people lose either each bleed or a daily amount and then I can compare wether mine is about average ,mild or severe  any help appreciated
 
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Discussion / Nasal skin graft
« Last post by stevesmash on May 05, 2010, 08:38:08 PM »
Has anyone had a skin graft to stop the nosebleeds? I am heading towards my third week since the op on one side with laser treatment on the other(2nd time). So far so good - not even a dribble! Just wondering if anyone has any long term news/advise.
Regards Steve.
Its now getting on 10 weeks since the graft. By now with the other ops(clipping of artery and lazer) I have been back to square one. But I must say that touch wood the graft is holding up. I have have 1 or 2 small trickles nothing that cant be caught in a tissue rather than a bucket. The lazered side has had a few small leaks but on the whole so far so good.
Has anyone else had a graft and had a good result? Must say my leg took a while to heal up and was just a tad sore for a while.
Good luck all.
Regards Steve.
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